Assessing Life

The Organisation of Genetic Testing

Bernhard Wieser, Wilhelm Berger (Herausgeber)

Buch | Softcover

240 Seiten

2010 | 1., Aufl.
Profil Mchn. (Verlag)
978-3-89019-643-5 (ISBN)

Infos

Assessing Life: On the Organisation of Genetic TestingHow does genetic medicine change our lives?How does it change the ways in which health and disease are understood and experienced?These questions explicate what this book is concerned with. Medicine, as we know it today, is highly organised. What happens in a medical consultation, what is done to us, but also what we are expected to do with ourselves is structured by action regimes. Consequently, these regimes are also crucially important for the ways in which individuals come across the possibility of a genetic test. They structure if and how patients can make their choices, but also what kind of tests are offered to whom, the information provided and the support that is made available. It is therefore a central claim of our approach that the ways in which responsibility is constructed, how human beings understand it and how they are stimulated to act responsibly is to a very high degree shaped by organisational conditions of medical practice. Seen from this perspective, responsibility is a result of specifically organised, socio-technical contexts of action. Accordingly, the experience of health and disease is not a quasi-natural process. Nor do experiences emanate from an inner nucleus of the subject, which is there a priori. It is the task of sociological research and philosophical reflection to show how what appears to be individual is shaped and constituted by structural socio-technical conditions.

Autoren

Mag. Bernhard Wieser, Studium Erziehungswissenschaften/Erwachsenenbildung an der Univ. Graz. Seit 1999 Mitarbeiter des Interuniversitären Forschungszentrums für Technik, Arbeit und Kultur IFZ in Graz, Lehrbeauftragter der Univ. Graz. Arbeitsschwerpunkte: Technik und Bildung; Bildungsaspekte von Gen- u. Biotechnologie. Das Interuniversitäre Forschungszentrum für Technik, Arbeit und Kultur ( I F Z ) wurde 1988 als interdisziplinäres Forschungsinstitut gegründet und beschäftigt sich mit Fragen der sozial- und umweltverträglichen Technikgestaltung. Das IFZ ist der Grazer Standort der Abt. Technik- u. Wissenschaftsforschung des I F F (Interuniversitäres Institut für interdisziplinäre Forschung u. Fortbildung der Universitäten Klagenfurt, Wien, Innsbruck und Graz).

Wilhelm Berger, ao. Univ.-Prof. Dr., arbeitet am Institut für Technik- und Wissenschaftsforschung und ist Prodekan der Fakultät für Interdisziplinäre Forschung und Fortbildung (IFF) an der Alpen-Adria Universität Klagenfurt, Österreich.

Inhalt

Bernhard WieserIntroductionMichael Arribas-AllyonThe Politics of Autonomy in Genetic Testing of ChildrenWilhelm BergerTowards an Ethics of Genetic TestingStefanie Mayer, Peter Biegelbauer, Erich Griessler & Sosuke IwaeThe Regulation of Genetic Testing: A Three Country ComparisonVincezo PavoneGenetic Testing, Geneticisation and Social Change: Insights from Genetic Experts in SpainAngus Clarke, Bridget Hendicott, Peter MacSorley& Ian M Frayling'Mainstreaming' and the Impact on Clinical Taxonomy: A Clinical Perspective on the Introduction of New Genetic Tests.Anne-Marie C. PlassExtension of the Newborn Screening Programme in the Netherlands: Opinions of Prospective Parents, and Unintended Side Effects.Elisa PieriPredictive Genetic Testing and the Promise of Personalised MedicineCarla van El, Toine Pieters & Martina CornelThe Changing Focus of Screening Criteria in the Age of Genomics: A Brief History from the NetherlandsJoëlle Vailly & Cécile EnsellemInforming Populations, Governing Subjects: The Practices of Screening for a Genetic Disease in FranceDaniela FreitagInterrelated Identities: Being a Parent of a Child with Cystic FibrosisSusan CoxGenetic Testing and Experiences of Identity: Some Neglected DimensionsAbout the Authors

Produkt-Details

• Erscheint lt. Verlag: 12.7.2010
• Reihe/Serie: Technik- und Wissenschaftsforschung /Science and Technology Studies ; 59
• Sprache: englisch
• Maße: 148 x 210 mm
• Gewicht: 445 g
• Einbandart: Paperback
• Themenwelt: Medizin / Pharmazie ► Allgemeines / Lexika
• Themenwelt: Technik
• Schlagworte: Genetic Testing • Genetik • Genetik / Erblehre • Hardcover, Softcover / Medizin/Allgemeines • HC/Medizin/Allgemeines • newborn screening • Personalised Medicine
• ISBN-10: 3-89019-643-8 / 3890196438
• ISBN-13: 978-3-89019-643-5 / 9783890196435
• Zustand: Neuware