Frameworks of Choice

Predictive and Genetic Testing in Asia

Margaret M.E. Sleeboom-Faulkner (Herausgeber)

Buch | Softcover

272 Seiten

2010
Pallas Publications (Verlag)
978-90-8964-165-6 (ISBN)

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Frameworks of Choice: Predictive and Genetic Testing in Asia is the first comparative study of predictive and genetic testing in Asia in the English language. It explores genetic and predictive testing in relation to political and social institutions such as education, healthcare, research regulation and genetic governance. It is a unique study of genomic policy-making, grounded in empirical fieldwork in China, Japan, India and Sri Lanka.The volume presents original theoretical analyses of the cultural and political dimensions of predictive and genetic testing by analysing the social, cultural, political and economic environment of choices that people have before and after they undergo a genetic or predictive test. These frameworks of choice also shed light on the different test options of people in developing countries and affluent welfare societies, explaining the so-called therapeutic gap occurring when no therapies are available after diagnosis.

Margaret Sleeboom-Faulkner is Reader in Social Anthropology at the University of Sussex.

Acronyms, Acknowledgements, 1. Frameworks of Choice, 2. A ‘Therapeutic Gap’, 3. Private and Public Eugenics, 4. Population Genetic Screening for Sickle Cell Anaemia among the Rural and Tribal Communities in India, 5. Predictive Genetic Testing in India, 6. How Japanese Women Describe Their Experiences of Prenatal Testing, 7. Cultural Notions of Disability in Japan: Their Influence on Prenatal Testing, 8. Genetic Tests and Insurance in Japan: The Case for a Regulatory Framework, 9. Genetic Testing for Duchenne Muscular Dystrophy in China: Vulnerabilities among Chinese Families, 10. Ramification of Choice?, 11. Genetic Testing and Diet related Disease in Asia: Preventing Diseases or Misleading Marketing?, 12. The Asian Genome: Racing in an Age of Pharmacogenomics, 13. Discussion: Predictive and Genetic Testing in Asian and International Contexts, Contributors, Bibliography,238 Index

Erscheint lt. Verlag	5.3.2010
Reihe/Serie	IIAS Publications series
Verlagsort	Amsterdam
Sprache	englisch
Themenwelt	Medizin / Pharmazie ► Allgemeines / Lexika
	Studium ► 2. Studienabschnitt (Klinik) ► Humangenetik
	Sozialwissenschaften
ISBN-10	90-8964-165-3 / 9089641653
ISBN-13	978-90-8964-165-6 / 9789089641656
Zustand	Neuware