Buying your Self on the Internet

Wrap Contracts and Personal Genomics

Andelka M. Phillips (Autor)

Buch | Hardcover

320 Seiten

2019
Edinburgh University Press (Verlag)
978-1-4744-2259-8 (ISBN)

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This book examines the rise of the direct-to-consumer genetic testing industry (DTC) and its use of 'wrap' contracts. It uses the example of DTC to show the challenges that disruptive technologies pose for societies and for regulation. It also uses the wrap contracts of DTC companies to explore broader issues with online contracting.

Andelka M. Phillips is a Senior Lecturer in Law, Science and Technology at TC Beirne School of Law, University of Queensland, Australia. She is a writer and academic whose research interests lie in the areas of Information Technology Law and Health and Medical Law. She was formerly the Ussher Assistant Professor in Information Technology Law at Trinity College Dublin and the Convenor of Trinity College Dublin Law School’s Technology, Law and Society Research Group.

Table of Statutes Table of Cases

Direct-To-Consumer Genetic Testing and Regulating Disruptive Technology

Introduction
Aims of This Book
Guidance for Readers
What Is Personal Genomics or Direct-to-Consumer Genetic Testing?
Summary of How DTC Services Operate
Bringing Disruptive Technology to the Public
Data Deluge
Methodology
How Should the DTC Industry Be Regulated? The Policy Response to Date
Sources of Law Which Might Be Applicable to DTC in the UK and EU
What Can Go Wrong?
Conclusion

The Science behind that Click of the Mouse

Introduction
The Nature of Genetic Information and Genetic Exceptionalism
Recent Advances in Genetic and Genomic Science
Conclusion

The Rise of Personal Genomics – Overview of the Direct-to-Consumer Genetic Testing Industry

Introduction
Overview of the DTC Industry
Health Tests
Ancestry Testing
Genetic Relatedness Testing
Testing for Athletic Ability
Testing for Child Talent and Testing of Children
Surreptitious (‘Infidelity’) Testing
Match Making Testing
Conclusion

Privacy, Data Protection, and Security in the Context of Direct-to-Consumer Genetic Testing Services

Introduction
General Data Protection Regulation (GDPR)
The UK’s Data Protection Legislation
Privacy Policies and Notices and Website Design
US Privacy Law
Canadian Genetic Privacy Law
Secondary Use of Genetic Databases – the Golden State Killer and Beyond
Indigenous Peoples and Data Sovereignty
Privacy Best Practices for Consumer Genetics Testing Services (July 2018)
Conclusion

Clicking Away Rights in DNA: A Review of DTC Contracts

Introduction
Challenging Unfair Terms in DTC Contracts
Conclusion

Future Directions for DTC Governance

Note for Readers Interested in Purchasing DTC Tests
Suggestions for Reform
Final Thoughts

Bibliography

Erscheinungsdatum	03.07.2019
Reihe/Serie	Future Law: Challenges for Law, Technology and Culture
Verlagsort	Edinburgh
Sprache	englisch
Maße	156 x 234 mm
Gewicht	614 g
Themenwelt	Studium ► 2. Studienabschnitt (Klinik) ► Humangenetik
	Recht / Steuern ► Allgemeines / Lexika
	Recht / Steuern ► EU / Internationales Recht
	Recht / Steuern ► Privatrecht / Bürgerliches Recht ► IT-Recht
	Recht / Steuern ► Privatrecht / Bürgerliches Recht ► Medizinrecht
	Recht / Steuern ► Wirtschaftsrecht
ISBN-10	1-4744-2259-4 / 1474422594
ISBN-13	978-1-4744-2259-8 / 9781474422598
Zustand	Neuware