Caring for Children with Special Healthcare Needs and Their Families (eBook)

A Handbook for Healthcare Professionals

Linda L. Eddy (Herausgeber)

eBook Download: PDF

2013
John Wiley & Sons (Verlag)
978-1-118-51796-3 (ISBN)

Infos

Caring for Children with Special Healthcare Needs and Their Families: A Handbook for Healthcare Professionals provides a guide for addressing the challenges of providing optimal general and routine care for the special needs population.  More than just caring for the patients, the text stresses the importance of caring for their families as well.

The book begins with chapters on common aspects of this population, including physical or sensory disabilities and developmental and learning disabilities.  Subsequent chapters expound on more specific topics related to communication, mobility, emotional issues, quality of life, and end-of-life.

Caring for Children with Special Healthcare Needs and Their Families is a must-have book for family  and pediatric nurse practitioners, registered nurses, healthcare technicians, physician assistants and social services professionals who see these patients regularly as part of their daily patient load.

Autor

Linda L. Eddy, Ph.D., RN, CPNP, is Associate Professor for the College of Nursing at Washington State University in Vancouver, Washington, USA.

Inhalt

Caring for Children with Special Healthcare Needs and Their Families : A Handbook for Healthcare Professionals 3
Contents 9
Contributors 17
1 Introduction 21
2 Common Physical or Sensory Disabilities 27
Cerebral Palsy 29
Diagnosis, etiology, and risk factors of CP 29
Presenting signs and symptoms of CP 31
Classification of CP 32
Prognosis and complications 33
Common pharmacologic and non-pharmacologic therapies 34
Role of nursing 36
Roles of occupational and physical therapy 37
Roles of speech and language therapy 38
Roles of social work and psychology 39
Transition to adulthood 39
Neural Tube Defects (Myelodysplasia/Spina Bifida) 41
Etiology 41
Presenting signs and symptoms 42
Prognosis 43
Common pharmacologic and non-pharmacologic therapies 43
Roles of nursing 45
Occupational and physical therapy 45
Speech and language therapy 46
Social work and psychology 47
Transition to adulthood 47
Muscular Dystrophy 47
Etiologies of muscular dystrophy 48
Presenting signs and symptoms 48
Prognosis 49
Common pharmacologic and non-pharmacologic therapies 49
Roles of nursing 50
Occupational and physical therapy 51
Speech and language therapy 51
Social work and psychology 52
Traumatic Brain Injury 52
Etiologies 52
Presenting signs and symptoms 52
Prognosis 53
Common pharmacologic and non-pharmacologic therapies 53
Roles of nursing 53
Occupational and physical therapy 54
Speech and language therapy 54
Spinal Cord Injury 54
Etiologies 54
Prognosis 55
Presenting signs and symptoms 55
Common pharmacologic and non-pharmacologic therapies 55
Roles of healthcare providers 56
Occupational, physical, and speech therapies 58
Social work and psychology 58
Children with Deafness and Hearing Impairment 59
Etiology of deafness 59
Presenting signs and symptoms 60
Prognosis 61
Common pharmacologic and non-pharmacologic therapies 61
Role of nursing 62
Occupational and physical therapy 63
Speech and language therapy 63
Social work and psychology 64
Children with Blindness and Visual Impairment 64
Etiology 65
Presenting signs and symptoms 65
Prognosis 66
Common pharmacologic and non-pharmacologic therapies 66
Role of nursing 66
Occupational and physical therapy 67
Speech and language therapy 68
References 68
Online Resources 72
3 Common Developmental/Learning Disabilities 75
The Child with Attention Deficit/Hyperactivity Disorder 77
Definition and presenting signs and symptoms 77
Etiology 77
ADHD in preschoolers 78
ADHD in school-aged children and adolescents 78
Psychopharmacologic management of ADHD 79
Psychotherapeutic/behavioral management of ADHD (NIMH, 2008) 80
Application to nursing and multidisciplinary practice 81
The Child with Intellectual Disability 81
Definition and presenting signs and symptoms 81
Prevalence of intellectual disability 81
Etiology 82
Diagnosis 82
Down Syndrome as Exemplar of Intellectual Disability 83
Application to clinical practice 84
The Child with An Autism Spectrum Disorder 84
Definition and presenting signs and symptoms 84
Prevalence of ASDs 84
Diagnosis 85
Application to clinical practice 86
MIA – A Child with Down Syndrome 86
References 87
4 Caring for Children with Feeding and Communication Differences 89
Overview of Early Feeding Skills 92
Developmental feeding milestones: Gestational period through age 7 92
Overview of Early Communication Skills 94
Developmental communication milestones infancy through age 7 94
Screening of Early Feeding and Communication Skills 96
Impaired feeding skills 96
Impaired communication skills 98
Referral and Management: Audiologists and Speech-Language Pathology Professions 101
References 103
5 Caring for Children with Mobility Differences 105
What Is Mobility? 107
The International Classification of Functioning, Disability and Health (ICF) 107
Participation and Functional Ability 108
Assistive technology 111
Gait analysis 112
What Can Nurses do to Help Children with Disabilities? 112
Conclusion 113
References 113
6 Caring for the Child with Special Social and Emotional Needs 115
Introduction 117
Structure of this Chapter 117
Etiological Theories 117
The Process of Child Assessment and Intervention 119
The salience of rapport building to the process 119
Systematic data gathering 120
Analysis of data gathered 122
Intervention 124
The Interdisciplinary Team: A Critical Aspect of the Intervention 125
Case Reviews of Select Disorders 125
Autism Spectrum Disorders (ASDs) 125
Social phobia 127
Anorexia nervosa 128
Major depressive disorder 129
Other Conditions 131
Attention deficit and hyperactivity disorder 131
Substance abuse 131
Post-traumatic stress disorder 132
Conclusion 132
References 132
7 Legal and Regulatory Issues 135
Introduction 137
Children with Disabilities and the Law 138
Individuals with Disabilities Educational Act 138
No Child Left Behind Act 141
Americans with Disabilities Act of 1990 143
Ethical Issues in Caring for Children with Disabilties 144
Laws Affecting the Education of Disabled Children and the Healthcare System 146
Conclusion 148
References 148
Resources for Parents 149
8 Use of Theories to Guide Practice 151
Individual Theories 153
Physical growth and development 153
Erikson’s theory of psychosocial development 153
Piaget’s theory of cognitive development 156
Family Theories 157
Family life course perspective (developmental family theory) 158
Systems theory 159
Basic systems terminology 159
Family ecological theory 160
Terminology 160
Resources 161
Family assessment guidelines 161
Family genograms and ecomaps 162
References 166
9 Enhancing Quality of Life For Children with Special Healthcare Needs 167
Quality of Life Defined 169
Decreasing Pain 170
Pain assessment 170
Pain management in children with special needs 172
Pain assessment and management specific to children with special needs 172
Decreasing Fatigue 173
Resources 175
References 175
10 Impact on Family and Increasing Family Well-Being 179
Family Well-Being 181
Subjective Well-Being in Parents of Children with Disabilities 182
Linking Family Well-Being to Child Well-Being 184
Family Diversity and Well-Being 185
Making a Difference: Family Interventions 186
Culturally sensitive interventions 186
Flexible interventions 187
References 188
11 Public Health and School Health Nursing of Children with Special Healthcare Needs 191
Community Health Nursing with Children with Special Health Needs 193
Public Health and Children with Special Health Needs 193
Public Health and Community Health Programs Serving this Special Needs Population 194
Community Health Nursing Roles with Children with Special Health Needs 196
Case Management with Children with Special Health Needs 198
Evidence-Based Home Visiting Programs for Children with Special Health Needs 201
The Child with Special Needs in the School Setting 203
Conclusion 205
References 206
12 End-of-Life Care for Children with Special Needs and Their Families 209
Children’s Understanding of Death 211
Difficult Conversations About Death and Dying with Children and Their Families 219
Providing Crisis Intervention for Families and Peers After a Child Dies 226
Resources 234
For parents 234
For children 235
For caregivers 235
For parents 235
For children and adolescents 236
References 236
13 Assessment, and Development of an Interprofessional Plan of Care 239
The Assessment Process 242
Preparing for your visit with the family 242
Practice tips: Finding reliable information on the Internet 243
Cultural considerations and the use of interpreters 244
Practice Tip: The following tips can be useful when working with an interpreter:(Lipson & Dibble, 2005
Family engagement–Getting to know the family and child 246
Practice Tip: Strategies to facilitate an effective relationship with families 247
The assessment process 248
Common issues in children with special needs 249
Developing a Plan of Care 253
Key components of a care plan 253
Role of the care coordinator in developing and carrying out the plan of care 253
Example of a problem and possible interventions 254
Documentation and the use of electronic health records 255
Practice tip: What to include in the EHR 256
Documentation of care coordination activities 256
A note about electronic health records (EHRS) 258
Other Recommended Resources 259
References 259
Other Recommended Readings 260
Index 263

Rezensionen

"Although written for healthcare providers, the book is
geared more for advanced practice nurses. It is recommended as a
supplement to references on children with special healthcare
needs." (Doody's, 23 May 2014)

Produkt-Details

• Erscheint lt. Verlag: 23.1.2013
• Sprache: englisch
• Themenwelt: Medizin / Pharmazie ► Medizinische Fachgebiete ► Pädiatrie
• Themenwelt: Medizin / Pharmazie ► Pflege ► Kinderkrankenpflege
• Schlagworte: addressing • Aspects • Book • Caring • Chapters • children • Common • Communication • Disabilities • Families • Guide • Handbook • Healthcare • importance • Intellectual Disability Nursing • Krankenpflege • Krankenpflege bei geistigen Störungen • Krankenpflege bei geistigen Störungen • Krankenpflege in der Pädiatrie u. Neonatologie • Krankenpflege in der Pädiatrie u. Neonatologie • nursing • Nursing Children & Young People • patients • Physical • Population • Professionals • Special • specific • stresses • subsequent chapters • Topics
• ISBN-10: 1-118-51796-2 / 1118517962
• ISBN-13: 978-1-118-51796-3 / 9781118517963