Occupational Therapy and Duchenne Muscular Dystrophy (eBook)

Kate Stone, Claire Tester, Joy Blakeney, Alex Howarth, Hether McAndrew, Nicola Traynor, Mary McCutcheon, Ruth Johnston (Autoren)

eBook Download: PDF

2007
John Wiley & Sons (Verlag)
978-0-470-51040-7 (ISBN)

Infos

This is a practical guide for Occupational Therapists and others who provide services to people who have Duchenne muscular dystrophy. The goal of the book is to deepen the readers understanding of the support that occupational therapists can offer to families who are affected by this condition. Written by experienced occupational therapists with a special interest in Duchenne muscular dystrophy. The book will provide information and support to therapists who may be working in isolation, or who rarely work with this client group. It is for the experienced therapist as well as the student. Each chapter of this book gives a clear and comprehensive description of different aspects of occupational therapy assessments and interventions.

Joy Blakeney, Dip COT, Senior Practitioner, Paediatric Community Occupational Therapist, formerly of West Lothian Council Social Work Department.

Alex Howarth, BSc Occupational Therapy, Senior Paediatric Occupational Therapist, NHS Lothian University Hospitals Division.

Ruth Johnston, BSc (Hons) Occupational Therapy, Senior Occupational Therapist - Child Health, NHS Fife.

Heather McAndrew, BSc (Hons) Occupational Therapy, Senior Paediatric Occupational Therapist, NHS Borders.

Mary McCutcheon, Dip COT, Senior Paediatric Occupational Therapist, formerly of Ashcraig School, Glasgow.

Kate Stone, Dip COT, MSc (MedSci) in Palliative Care, Senior Practitioner, Paediatric Community Occupational Therapist, Inverclyde Council Social Work Services.

Claire Tester, Dip COT, PG Dip, AHP Consultant in Cancer for Scotland, Scottish Executive on secondment from the Children's Hospice Association, Scotland (CHAS).

Nicola Traynor, BSc Occupational Therapy, Senior Paediatric Occupational Therapist, NHS Lothian University Hospitals Division.

Inhalt

Occupational Therapy and Duchenne Muscular Dystrophy 1
Contents 7
Contributors 15
Preface 17
Acknowledgements 19
1: Duchenne Muscular Dystrophy: A Medical Overview 21
CLINICAL FEATURES 22
KEY POINTS 23
2: The Occupational Therapy Process 25
INTRODUCTION 25
DEFINITION OF OCCUPATIONAL THERAPY 26
ASSESSMENT 27
PLANNING 35
INTERVENTIONS 35
EVALUATION 40
KEY POINTS 40
CASE STUDY 41
STUDY QUESTIONS 42
3: The Psychosocial and Emotional Impact of Duchenne Muscular Dystrophy: Some Considerations 43
INTRODUCTION 43
SOME CONSIDERATIONS AT DIFFERENT AGES AND STAGES 45
OVERNIGHT VENTILATION 47
GRIEF AND LOSS 47
DEPRESSION 48
IMPACT ON PARENTS 49
PSYCHOSOCIAL POINTERS TO CONSIDER 50
EMOTIONAL IMPACT UPON THERAPIST 53
KEY POINTS 54
CASE STUDY 54
STUDY QUESTIONS 55
4: From Our Point of View: From Young Men with Duchenne Muscular Dystrophy, as Shared with Claire 57
AGED 11 YEARS 58
AGED 15 YEARS 59
AGED 18 YEARS 60
AGED 27 YEARS 62
STUDY QUESTIONS 63
5: Personal Activities of Daily Living 65
INTRODUCTION 65
GENERAL UPPER-LIMB FUNCTION FOR SELF-CARE TASKS 66
TOILETING 67
WASHING 70
GROOMING 71
DRESSING 71
EASY REACHER 72
EATING 72
SLEEPING 74
CALL SYSTEMS 75
SEXUAL HEALTH AND WELL-BEING 76
KEY POINTS 77
CASE STUDY 77
STUDY QUESTIONS 79
SOLUTION 79
6: Seating 81
INTRODUCTION 81
CONSIDERATIONS 81
ADAPTATIONS 82
TABLES/TRAYS 85
WHEELCHAIRS 86
ENVIRONMENTAL CONSIDERATIONS 88
FUNDING 89
SERVICING 90
CAR SEATING 90
KEY POINTS 91
CASE STUDY 91
STUDY QUESTIONS 92
7: Moving and Handling 93
INTRODUCTION 93
WHEN DOES MOVING AND HANDLING NEED TO BE INTRODUCED? 94
NEEDS OF THE INDIVIDUAL REQUIRING ASSISTANCE 95
INDIVIDUAL CAPABILITY OF THE HANDLER 96
ENVIRONMENTAL CONSIDERATIONS 97
MOVING AND HANDLING EQUIPMENT 97
KEY POINTS 100
CASE STUDY 100
STUDY QUESTIONS 100
SOLUTION 101
8: Occupational Therapy in Education 103
INTRODUCTION 103
CLASSROOM CONSIDERATIONS 104
EQUIPMENT 106
OTHER AREAS OF THE SCHOOL 109
TRANSITION PLANNING 112
KEY POINTS 114
CASE STUDY 115
CASE STUDY QUESTIONS 116
SOLUTION 116
STUDY QUESTIONS 117
9: Learning and Behaviour Difficulties 119
INTRODUCTION 119
DEVELOPMENTAL PROFILE 119
ATTENTION DEFICIT 120
DYSPRAXIA 121
DYSLEXIA 122
BEHAVIOUR 122
SOCIAL SKILLS AND SELF-ESTEEM 124
LAST WORD 125
KEY POINTS 126
CASE STUDY 126
STUDY QUESTIONS 126
10: Leisure and Play 127
INTRODUCTION 127
PLAY 128
HOLIDAYS 129
SPORTS 131
HOBBIES 132
FRIENDS AND FAMILY 133
KEY POINTS 133
CASE STUDY 134
STUDY QUESTIONS 135
11: Community Care 137
INTRODUCTION 137
COMMUNITY-CARE ASSESSMENTS 137
COMMUNITY-CARE PLANS 140
COMMUNITY-CARE SERVICES 141
IMPLEMENTING A CARE PLAN 146
MONITORING AND REVIEWING 147
KEY POINTS 147
CASE STUDY 148
STUDY QUESTIONS 149
12: Housing Issues 151
INITIAL CONTACT 151
LEGISLATION 152
THE EXISTING HOUSE 152
HOUSING OPTIONS 158
EMOTIONAL ISSUES 160
KEY POINTS 161
CASE STUDY 162
STUDY QUESTIONS 163
13: Social Needs: An Overview 165
INTRODUCTION 165
CHECKLIST 167
COMMENT 169
KEY POINTS 170
CASE STUDY 170
STUDY QUESTIONS 171
14: Employment 173
INTRODUCTION 173
OCCUPATIONAL THERAPISTS AND WORK 173
CAREERS ADVICE 174
DISABILITY EMPLOYMENT ADVISERS 175
EMPLOYMENT ASSESSMENTS 175
WORKSTEP 175
NEW DEAL FOR DISABLED PEOPLE 176
JOB INTRODUCTION SCHEME 176
ACCESS TO WORK 176
THE NEUROMUSCULAR CENTRE 177
DISABILITY DISCRIMINATION ACT 1995 177
EMPLOYERS 178
INTERVIEWS 178
WORK ADJUSTMENTS 179
DISCRIMINATION 179
FLEXIBLE WORKING FOR CARERS 180
KEY POINTS 180
CASE STUDY 180
STUDY QUESTIONS 181
15: Transport 183
INTRODUCTION 183
DISABILITY LIVING ALLOWANCE 183
MOTABILITY SCHEME 184
ROAD TAX 184
PARKING BADGES AND PARKING BAYS 184
TRANSPORT TO HOSPITAL 185
TRANSPORT TO SCHOOLS AND NURSERIES 185
TRANSPORT TO FURTHER EDUCATION 186
TRANSPORT TO EMPLOYMENT 186
TRAVEL BY PRIVATE CAR 186
TRAVEL BY TAXI 188
TRAVEL BY BUS 188
TRAVEL BY FERRIES AND SHIPS 189
TRAVEL BY TRAIN 190
TRAVEL BY UNDERGROUND 191
TRAVEL BY TRAM 191
TRAVEL BY AEROPLANE 191
CONCESSIONARY FARES 191
WHEELCHAIRS 193
INSURANCE 194
KEY POINTS 194
CASE STUDY 194
STUDY QUESTIONS 196
16: Bereavement and Anticipatory Grief 197
INTRODUCTION 197
LOSS 197
BEREAVEMENT 198
ANTICIPATORY GRIEF 200
WHEN SOMEONE DIES 200
IN SUMMARY 201
KEY POINTS 201
CASE STUDY 201
STUDY QUESTIONS 202
17: The Role of the Hospice 203
INTRODUCTION 203
HOSPICES AND PALLIATIVE CARE 203
ROLE OF THE HOSPICE 205
SUMMARY 210
KEY POINTS 211
CASE STUDY 211
STUDY QUESTIONS 212
18: In Conversation with Occupational Therapists 213
INTRODUCTION 213
KEY POINTS 217
STUDY QUESTIONS 217
19: The Future 219
Appendix I: Occupational therapy skills, knowledge base and fi elds of work 221
Appendix II: Occupational therapy seating assessment and recommendation 225
Appendix III: Occupational therapy seating assessment and recommendation 227
Appendix IV: Occupational therapy seating assessment and recommendation 231
Appendix V: Writing up risk assessments 235
Appendix VI: Access checklist 237
Appendix VII: Housing report 241
Appendix VIII: Housing assessment 245
References 251
Bibliography 261
FURTHER READING FOR DEPRESSION AND ANXIETY 261
FURTHER READING FOR SOCIAL NEEDS 262
FURTHER RESOURCES 262
SOME WEB ADDRESSES FOR ADD 263
DYSPRAXIA ASSESSMENTS 263
DYSLEXIA 263
SOCIAL SKILLS TRAINING 264
USEFUL WEBSITES 264
Index 267

Produkt-Details

• Erscheint lt. Verlag: 27.9.2007
• Sprache: englisch
• Themenwelt: Medizin / Pharmazie ► Medizinische Fachgebiete ► Orthopädie
• Themenwelt: Medizin / Pharmazie ► Naturheilkunde
• Themenwelt: Medizin / Pharmazie ► Pflege
• Themenwelt: Medizin / Pharmazie ► Physiotherapie / Ergotherapie ► Ergotherapie
• Schlagworte: Common • Condition • Contribute • defective • deformities • DMD • Duchenne Muscular dystrophy • Ergotherapie • experienced • Family • Gene • Gesundheits- u. Sozialwesen • Health & Social Care • heart • inherited disorder • Interest • Middle • Occupational • occupational therapy • OTS • Process • Progresses • Specialist • Stages • therapists ots • upon
• ISBN-10: 0-470-51040-4 / 0470510404
• ISBN-13: 978-0-470-51040-7 / 9780470510407