The Governance of Genetic Information

Who Decides?

Heather Widdows, Caroline Mullen (Herausgeber)

Buch | Hardcover

248 Seiten

2009
Cambridge University Press (Verlag)
978-0-521-50991-6 (ISBN)

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This volume maps the areas of ethical concern in the debate regarding the governance of genetic information, and suggests alternative ethical frameworks and models of regulation in order to inform its restructuring. Genetic governance is at the heart of medical and scientific developments, and is connected to global exploitation, issues of commodification, commercialisation and ownership, the concepts of property and intellectual property and concerns about individual and communal identity. Thus the decisions that are made in the next few years about appropriate models of genetic governance will have knock-on effects for other areas of governance. In short the final answer to 'Who Decides?' in the context of genetic governance will fundamentally shape the ethical constructs of individuals and their networks and relationships in the public sphere.

Dr Heather Widdows is a Senior Lecturer in the Department of Philosophy at the University of Birmingham, where she teaches moral philosophy and bioethics. Dr Caroline Mullen is a research officer at the Centre for European Law and Legal Studies, School of Law, University of Leeds.

Introduction Heather Widdows and Caroline Mullen; Section I. Problematising Governance of Genetic Information: 1. The medium and the message: tissue samples, genetic information and data protection legislation Neil C. Manson; 2. Me, myself, I: against narcissism in the governance of genetic information Søren Holm; 3. Decisions, consent and expectations of the individual Caroline Mullen; Section II. Ethical Frameworks of Governance: 4. Constructing communal models of governance: collectives of individuals or distinct ethical loci? Heather Widdows; 5. Rights, responsibility and stewardship: beyond consent Roger Brownsword; 6. Who decides what? Relational ethics, genetics and well-being Sarah Wilson; Section III. Redesigning Governance: 7. Involving publics in biobank governance: moving beyond existing approaches Kathryn G. Hunter and Graeme T. Laurie; 8. Genetic information and public opinion Andrew Edgar; 9. Harmonisation and standardisation in ethics and governance: Conceptual and practical challenges Ruth Chadwick and Heather Strange.

Erscheint lt. Verlag	3.9.2009
Reihe/Serie	Cambridge Law, Medicine and Ethics
Verlagsort	Cambridge
Sprache	englisch
Maße	156 x 234 mm
Gewicht	520 g
Themenwelt	Geisteswissenschaften ► Philosophie ► Ethik
	Medizin / Pharmazie ► Medizinische Fachgebiete ► Medizinethik
	Studium ► Querschnittsbereiche ► Geschichte / Ethik der Medizin
	Naturwissenschaften ► Biologie
	Recht / Steuern ► EU / Internationales Recht
	Recht / Steuern ► Privatrecht / Bürgerliches Recht ► Medizinrecht
	Sozialwissenschaften ► Soziologie
ISBN-10	0-521-50991-2 / 0521509912
ISBN-13	978-0-521-50991-6 / 9780521509916
Zustand	Neuware