Unexpected Journey of Caring (eBook)

The Transformation from Loved One to Caregiver

Donna Thomson, Zachary White (Autoren)

eBook Download: EPUB

2019
256 Seiten
Rowman & Littlefield Publishers (Verlag)
978-1-5381-2224-2 (ISBN)

Infos

The Unexpected Journey of Caring is a practical guide to finding personal meaning in the 21st century care experience. Readers are invited to actively reclaim and remake how they think of themselves, their care situation, and their capacities to provide care for their loved one and themselves.

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With a foreword by Judy Woodruff, The Unexpected Journey of Caring is a practical guide to finding personal meaning in the 21st century care experience.Personal transformation is usually an experience we actively seek outnot one that hunts us down. Becoming a caregiver is one transformation that comes at us, requiring us to rethink everything we once knew. Everything changesresponsibilities, beliefs, hopes, expectations, and relationships. Caregiving is not just a role reserved for ';saints'eventually, everyone is drafted into the caregiver role. It's not a role people medically train for; it's a new type of relationship initiated by a loved one's need for care. And it's a role that cannot be quarantined to home because it infuses all aspects of our lives.Caregivers today find themselves in need of a crash course in new and unfamiliar skills. They must not only care for a loved one, but also access hidden community resources, collaborate with medical professionals, craft new narratives consistent with the changing nature of their care role, coordinate care with family, seek information and peer support using a variety of digital platforms, and negotiate social supportall while attempting to manage conflicts between work, life, and relationship roles. The moments that mark us in the transition from loved one to caregiver matter because if we don't make sense of how we are being transformed, we risk undervaluing our care experiences, denying our evolving beliefs, becoming trapped by other's misunderstandings, and feeling underappreciated, burned out, and overwhelmed. Informed by original caregiver research and proven advocacy strategies, this book speaks to caregiving as it unfolds, in all of its confusion, chaos, and messiness. Readers won't find well-intentioned cliches or care stereotypes in this book. There are no promises to help caregivers return to a life they knew before caregiving. No, this book greets caregivers where they are in their journeynew or chronicnot where others expect (or want) them to be.

Autor

Donna Thomson is the author of The Four Walls of My Freedom: Lessons I’ve Learned From a Life of Caregiving. She is a consultant and speaker on issues relating to family caregiving, disability and aging. Donna is a patient and family advisor on health research and policy and she teaches family caregivers in Canada how to advocate for care in hospital and in the community. She blogs regularly at THE CAREGIVERS' LIVING ROOM www.donnathomson.com.Zachary White, PhD, is an award winning university professor who teaches undergraduate and graduate courses addressing topics such as provider-patient communication, caregiver communication, the patient experience, health and illness narratives, digital health literacy, social support and disclosure, and sense making amidst life transitions. As the founder of the caregiver blog and resource “The Unprepared Caregiver” (www.unpreparedcaregiver.com), his original writing voice mixes first-hand experiences, communication expertise, and cultural analysis featuring a care-centered point of view.

Inhalt

Foreword by Judy WoodruffIntroduction Chapter 1:I'm (Not) a CaregiverDisorientation: From Loved One to CaregiverChapter 2:Living In-Between Scripts (Transformational Moment #1) Chapter 3:A Hyper-Intolerance of Others (Transformational Moment #2)Chapter 4:Audience Betrayal (Transformational Moment #3)Chapter 5:Who am I Becoming and Why am I So Hard on Myself? (Transformational Moment #4)Chapter 6:When “Getting Through” isn’t Good Enough (Transformational Moment #5) Re-orientation and AdvocacyChapter 7:Making Meaning That Matters Now Chapter 8:Begin With the Basics: What Is My Role at Home, What Do I WANT It to Be? Chapter 9:You Are Not Alone, But Who Are the People in Your Neighborhood?Chapter 10:Navigating the Rough Waters of TransitionChapter 11:Not a Social Network, But a Care NetworkChapter 12:How to Know What You Want and Get What You NeedChapter 13:Power and Love = EmpowermentChapter 14:Cultivating ConnectionConclusion:A New Way of Seeing and Being

Produkt-Details

• Erscheint lt. Verlag: 5.6.2019
• Zusatzinfo: 4 Illustrations including: - 4 Halftones, Black & White including Black & White Photographs.
• Sprache: englisch
• Themenwelt: Sachbuch/Ratgeber ► Gesundheit / Leben / Psychologie ► Familie / Erziehung
• Themenwelt: Sachbuch/Ratgeber ► Gesundheit / Leben / Psychologie ► Lebenshilfe / Lebensführung
• Themenwelt: Sachbuch/Ratgeber ► Gesundheit / Leben / Psychologie ► Psychologie
• Themenwelt: Geisteswissenschaften ► Psychologie ► Trennung / Trauer
• Themenwelt: Sozialwissenschaften ► Pädagogik ► Sozialpädagogik
• Themenwelt: Sozialwissenschaften ► Soziologie
• Schlagworte: Alzheimer's • care experience • caregiver • caregiver needs • caregiver skills • Caregiving • caring for family • death and dying • dementia • family member caregivers • Hospice • self-care • terminal illness • terminally ill
• ISBN-10: 1-5381-2224-3 / 1538122243
• ISBN-13: 978-1-5381-2224-2 / 9781538122242