Sustaining Surveillance: The Importance of Information for Public Health
Springer International Publishing (Verlag)
978-3-030-63926-6 (ISBN)
This book presents a comprehensive theory of the ethics and political philosophy of public health surveillance based on reciprocal obligations among surveillers, those under surveillance, and others potentially affected by surveillance practices. Public health surveillance aims to identify emerging health trends, population health trends, treatment efficacy, and methods of health promotion--all apparently laudatory goals. Nonetheless, as with anti-terrorism surveillance, public health surveillance raises complex questions about privacy, political liberty, and justice both of and in data use. Individuals and groups can be chilled in their personal lives, stigmatized or threatened, and used for the benefit of others when health information is wrongfully collected or used. Transparency and openness about data use, public involvement in decisions, and just distribution of the benefits of surveillance are core elements in the justification of surveillance practices. Understanding health surveillance practices, the concerns it raises, and how to respond to them is critical not only to ethical and trustworthy but also to publicly acceptable and ultimately sustainable surveillance practices. The book is of interest to scholars and practitioners of the ethics and politics of public health, bioethics, privacy and data technology, and health policy. These issues are ever more pressing in pandemic times, where misinformation can travel quickly and suspicions about disease spread, treatment efficacy, and vaccine safety can have devastating public health effects.
Leslie Francis' research interests lie at the intersection of normative ethics, bioethics, and health law. Her primary current interests include disability and disability law, privacy especially with respect to health information, reproductive ethics, issues of justice in health care, and infectious disease and public health ethics. She also writes and teaches on issues in environmental ethics and philosophy of law.
After receiving a Ph.D. in political science from the University of Michigan, John Francis joined the political science faculty at Utah. While at Utah, he has served as chair of the Department of Political Science, as elected President of the Academic Senate, and as Senior Associate Vice-President for Academic Affairs. His research interests are in European comparative politics, federalism, and comparative regulatory policy. He has recently published articles on federalism and the emergence of rights, on HIV regulatory policy and the importance of public health strategies over criminalization, and on the obligations of states when legal regimes fail. He regularly teaches courses on European politics, the European Union, and theoretical perspectives on political science.
CHAPTER ONE: Surveillance Today and Tomorrow.- CHAPTER TWO: Autonomy, Consent, and Privacy.- CHAPTER THREE: Risk, Precautionary Principles, and Paternalism.- CHAPTER FOUR: New Data, New Purposes, New Actors, and Justice in Data Use.- CHAPTER FIVE: Transparency, Oversight, and Accountability for Data Use.- CHAPTER SIX: Reciprocal Obligations in Data Use.
| Erscheinungsdatum | 08.04.2021 |
|---|---|
| Reihe/Serie | Public Health Ethics Analysis |
| Zusatzinfo | X, 224 p. 1 illus. |
| Verlagsort | Cham |
| Sprache | englisch |
| Maße | 155 x 235 mm |
| Gewicht | 524 g |
| Themenwelt | Geisteswissenschaften ► Philosophie ► Allgemeines / Lexika |
| Medizin / Pharmazie ► Allgemeines / Lexika | |
| Schlagworte | emerging health threats • Health Data Collection • health data collection and use • Health surveillance • New Public Health • Public Health Surveillance |
| ISBN-10 | 3-030-63926-6 / 3030639266 |
| ISBN-13 | 978-3-030-63926-6 / 9783030639266 |
| Zustand | Neuware |
| Informationen gemäß Produktsicherheitsverordnung (GPSR) | |
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